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Idea #137: Informed Consent and Authorization Functionality

Written by atavei the 7 Apr 10 at 19:06. Related project: 1.x all. Status: New
Rationale
Nowadays, all research with human subjects require informed consent and authorization. The use of a program such as LimeSurvey in academic, government, or business environments require a mechanism of informed consent. In the specific case of academic environments, Institutional Review Boards WILL NOT APPROVE any type of research with human subjects without a mechanisms to verify the informed consent. Restrictions such as this are already found (or likely to be found in the near future) in government, medical and some business settings. Usage of LimeSurvey in academic--or other-- settings will be hindered by the absence of this kind of functionality.


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Solution #1: Include informed consent acquiescence as a standard feature
Written by atavei the 7 Apr 10 at 19:06.
Although a Workaround to address this issue exists for the Register page, and another (that I have added to the Forums) exists for the Welcome page, this kind of functionality should be available as a standard feature. Users should not be required to write javascript code or to play around in the template area to reach this kind of functionality. A user should have the option to select (if so required) where the consent verification should be made: in the Register page, or in the Welcome page when registration is not required. A mechanisms to upload/download a pdf of the consent and authorization statement should be provided also. Users should be able to download the consent to which they are acquiescent. Many Institutional Review Boards require that a copy of the consent be provided to the users if so requested.

Hope to see this functionality added in LS1 and LS2!
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Solution #2: Workaround: Set up yes/no question with conditional display of all others
Written by mfreund the 6 Jul 10 at 22:14.
I support this idea, but here's the workaround I've used.

As the first question (and group) of the survey, I set up a yes/no or list radio button question with the consent text. I also made a PDF of the consent form and put a link in it in the body of the consent text so they can download it.

Then I set all other questions in the survey to display only if the answer to the first question is "yes" or "I agree."

Not the most elegant solution, but it worked for my IRB and my respondents!

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jelo wrote on the 24 Apr 10 at 01:16
Can you put some links or a illustration of what the "informed consent" functionality should deliver. I see demand for "informed consent" in certain areas (mostly medical studies and expermiments). Is there an example of an business study with an upload of an informed consent document in a web survey? The response rate would be interesting.


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